February 8, 2018: PERVADE and Katie Shilton Visit University of California Irvine

This past weekend, the PERVADE Team came together for their first principle investigator meeting at the University of California Irvine, the home institution of Matthew Bietz. While the weather was a beautiful 80 degrees, the team was inside updating each other on their projects, troubleshooting research roadblocks, and planning out the next 5 months of research.

This semester’s research agenda includes developing a “Yell at an Ethicist” Booth at conferences, building vignettes to prompt IRB manager focus groups at PRIM&R, exploring ethical considerations in data management plans, and exploring ethics curricula offered in computer science programs across the US.

The Department of Informatics at Irvine was kind enough to host a lunch with their PhD students who are exploring research questions from health information system design to data analytics for smart cities. Furthermore, the Department of Informatics hosted a panel discussion for the PERVADE team to share their research goals and take questions from the audience. The event can be viewed below.

Thank you once again UCI for hosting the PERVADE Team!

Robot MarketPlace is insecure; GlucoMon behind the times

Executive: Good morning everyone, thank you for meeting on such a short notice. As we all know, Robot Marketplace isn’t the only place people download apps. We need to migrate GlucoMon to the Fruit OS Platform as soon as possible, or we are going to lose our competitive advantage. This project team was formed to manage the migration. I would like to introduce Gary Penderton, our Technical Director, (gestures to Gary; Gary nods), Julie Chen, our Marketing Director (gestures to Julie; Julie replies hi), anddddd our Assistant Lead Counsel and lawyer, Al Tross  (everyone boos; Gary gives a thumbs down; Al crosses his arms and rolls his eyes)

Simmer down everyone. Julie, I’ll let you take it from here.

I’ve hired an additional project manager, software developer, and user experience designer for this project. Please coordinate with them to complete this migration. They’ll all be working remotely, so email will be the best way to communicate. You’ll use our ICONS project planning tool to both communicate with the team via email and to draft and revise your proposals.
We’ll also be checking in with you via email throughout the process. Make sure you check your email regularly!

Robot Marketplace a Privacy Nightmare; Health Apps Flock to Fruit OS

Executive: Good morning everyone, thank you for meeting on such a short notice. As we all know, Robot Marketplace isn’t the only place people download apps. We need to migrate GlucoMon to the Fruit OS Platform as soon as possible, or we are going to lose our competitive advantage. This project team was formed to manage the migration. I would like to introduce Gary Penderton, our Technical Director, (gestures to Gary; Gary nods), Julie

Chen, our Marketing Director (gestures to Julie; Julie replies hi), anddddd our Assistant Lead Counsel and lawyer, Al Tross (everyone boos; Gary gives a thumbs down; Al crosses his arms and rolls his eyes) Simmer down everyone. Julie, I’ll let you take it from here.

I’ve hired an additional project manager, software developer, and user experience designer for this project. Please coordinate with them to complete this migration. They’ll all be working remotely, so email will be the best way to communicate. You’ll use our ICONS project planning tool to both communicate with the team via email and to draft and revise your proposals.
We’ll also be checking in with you via email throughout the process. Make sure you check your email regularly!

Everyoneeeeeeeeeee loves Fruit OS Platform

Congratulations everyone and thank you for your huge effort on this project. I am excited to announce our health application, GlucoMon, is the first glucose monitoring app to be sold in the Robot Marketplace!! Robot is the leading open-source platform for getting apps out to the public, and we think being first on that platform will mean our app will get a ton of downloads. Congrats!

Executive: Good morning everyone, thank you for meeting on such a short notice. As we all know, Robot Marketplace isn’t the only place people download apps. We need to migrate GlucoMon to the Fruit OS Platform as soon as possible, or we are going to lose our competitive advantage. This project team was formed to manage the migration. I would like to introduce Gary Penderton, our Technical Director, (gestures to Gary; Gary nods), Julie Chen, our Marketing Director (gestures to Julie; Julie replies hi), anddddd our Assistant Lead Counsel and lawyer, Al Tross (everyone boos; Gary gives a thumbs down; Al crosses his arms and rolls his eyes) Simmer down everyone. Julie, I’ll let you take it from here.

February 8, 2018: PERVADE and Katie Shilton Visit University of California Irvine

This past weekend, the PERVADE Team came together for their first principle investigator meeting at the University of California Irvine, the home institution of Matthew Bietz. While the weather was a beautiful 80 degrees, the team was inside updating each other on their projects, troubleshooting research roadblocks, and planning out the next 5 months of research.

This semester’s research agenda includes developing a “Yell at an Ethicist” Booth at conferences, building vignettes to prompt IRB manager focus groups at PRIM&R, exploring ethical considerations in data management plans, and exploring ethics curricula offered in computer science programs across the US.

The Department of Informatics at Irvine was kind enough to host a lunch with their PhD students who are exploring research questions from health information system design to data analytics for smart cities. Furthermore, the Department of Informatics hosted a panel discussion for the PERVADE team to share their research goals and take questions from the audience. The event can be viewed below.

Thank you once again UCI for hosting the PERVADE Team!

December 22, 2017: Privacy by Design Workshop Accepted to Engaged Scholarship for Ethics and Responsible Innovation in STEM Fields

We are excited to announce that Donal Heidenblad, Mary Kendig, Katie Shilton & Susan Winter recently had a workshop accepted to the Engaged Scholarship for Ethics and Responsible Innovation in STEM Fields Workshop at James B. Hunt, Jr. Library, NC State University, Raleigh, NC.

Their workshop is titled: The Privacy by Design Simulation: Ethics Education through Experiential Learning. The project team discovered that teaching the engineers who curate sensitive and personal data to make wise ethical decisions is a critical challenge for ethics education. Their poster presents the Privacy by Design Simulation: a role-playing game designed to teach information ethics through experiential learning. Donal believes that information ethics education can be improved by engaging students in real-world activities that mimic how software developers actually encounter and debate ethics in professional settings. This project tests their approach through deployment and evaluation of an ethics education role-playing game.

The 1.5 day workshop from March 14-15, 2018 will include a keynote presentation, poster presentations, interactive panels on engaged learning and scholarship, and breakout discussion sessions. Dr. Susan Winter will be conducting the workshop for the team! Register for the workshop online here: https://research.ncsu.edu/ges/events/cce-workshop-2018/

November 9, 2017: Donal & Jenny Prepare for Classroom Simulation

Over the past few months, Donal Heidenblad and Jenny Siegel have been working tirelessly to prepare their mobile development simulation for execution November 13 – 17. Students participating in the class and simulation will explore ethics surrounding mobile health data and data collection through a Dungeons & Dragons like scenario. As SIMCON (Dungeon Master), Jenny will direct students to explore literature, policy, and standards discussing requirements for deploying mobile apps collecting personal information and health data.
By the end of the exercise, students will develop two proposals; one proposal will represent a company’s privacy policy regarding their app while the other proposal will represent technical changes that are necessary to comply with privacy policy.

We look forward to the experience and student feedback! Stay tuned!

October 15, 2017: Lisa Federer Traces Hackathon Communication

This past August, Lisa Federer attended the NCBI Genomics Hackathon on August 14-16, 2017 to study scientific hackathons. The hackathon primarily focused on medical informatics, advanced bioinformatics analysis of next generation sequencing data, and metadata. Over the course of three days, students, scholars, and researchers worked to develop software/ pipelines for genomic analyses and medical informatics data.
Lisa tracked their conversations, tools, and work habits throughout the event, and days following the program.

Utilizing R and trace ethnography, Lisa examined different patterns of communication among teams and whether these have an impact on outcomes and outputs of the hackathon. Check out her repo which contains code used to create visual representations of hackathon communication in the form of Slack channels, Github Repos, and Google Docs!

September 18, 2017: MLIS Graduate Jennifer Siegel Joins EViD

The EViD team is excited to introduce its newest member, MLIS Graduate Student Jennifer Siegel. Supporting Donal Heidenblad’s interactive simulation research, Jenny will be working as a Simulation Controller and supervising week-long role-playing sessions. This involves facilitating scripted parts of the role-playing exercise, utilizing creativity to adapt to the participant’s needs and questions during the simulation.

Jenny received her undergraduate in Molecular & Cellular Biology and History of Science & Technology at Johns Hopkins University. Her previous work experience includes non-profit organizations such as the American Occupational Therapy Foundation and the National Alliance on Mental Illness.